Self Help Clearinghouse

CHARGE Syndrome

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CHARGE Syndrome Foundation, Inc.

International network. Founded 1993. Networking of families affected by CHARGE Syndrome (coloboma of the eye, choanal atresia, cranial nerve abnormalities, characteristic ears, and other problems). Publications include CHARGE syndrome brochure, New Parent packet (12+ pgs.), 'CHARGE Syndrome: A Management Manual for Parents' (270 pgs), and conference papers. Membership ($15/families; $20/professionals; $30/organizations) includes quarterly newsletter and parent-to-parent support. Conferences in odd years (e.g. 2005).
Write:
CHARGE Syndrome
2004 Parkade Blvd.
c/o Marion A. Norbury
Columbia, MO 65202-3121
Voice: 573-499-4694 (voice/fax); families only call 1-800-442-7604
Website: http://www.chargesyndrome.org
E-mail: marion@chargesyndrome.org
Verified: 5/16/2007

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

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