National Organization for Rare Disorders, Inc.Crohn's DiseaseImportant It is possible that the main title of the report Crohn's Disease is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Synonyms- CD
- Granulomatous Colitis
- Ileitis
- Regional Enteritis
Disorder Subdivisions- Granulomatous Ileitis
- Ileocolitis
- Gastritis
- Jejunitis
- Jejunoileitis
- Enterocolitis
- Duodenitis
General DiscussionCrohn's disease is an inflammatory bowel disease characterized by severe, chronic inflammation of the intestinal wall or any portion of the gastrointestinal tract. The lower portion of the small intestine (ileum) and the rectum are most commonly affected by this disorder. Symptoms may include watery diarrhea, abdominal pain, fever, and weight loss. The symptoms of Crohn's disease can be difficult to manage and proper diagnosis is often delayed. The exact cause of Crohn's disease is unknown.
. ResourcesAmerican Autoimmune Related Diseases Association, Inc. 22100 Gratiot Avenue Eastpointe, MI 48021 Tel: (586)776-3900 Fax: (586)776-3903 Tel: (800)598-4668 Email: aarda@aarda.org Internet: http://www.aarda.org/
Crohn's and Colitis Foundation of America 386 Park Avenue South 17th Floor New York, NY 10016-9804 USA Tel: (212)685-3440 Fax: (212)779-4098 Tel: (800)932-2423 Email: info@ccfa.org Internet: http://www.ccfa.org
NIH/National Digestive Diseases Information Clearinghouse 2 Information Way Bethesda, MD 20892-3570 Tel: (301)654-3810 Fax: (301)907-8906 Tel: (800)891-5389 Email: nddic@info.niddk.nih.gov Internet: http://www.niddk.nih.gov
NIH/National Institute of Allergy and Infectious Diseases 6610 Rockledge Drive MSC 6612 Bethesda, MD 20892-6612 Tel: (301)496-5717 Fax: (301)402-3573 TDD: (800)877-8339 Internet: http://www.niaid.nih.gov/
International Foundation for Functional Gastrointestinal Disorders P.O. Box 170864 Milwaukee, WI 53217 USA Tel: (414)964-1799 Fax: (414)964-7176 Tel: (888)964-2001 Email: iffgd@iffgd.org Internet: http://www.iffgd.org
Gastro-Intestinal Research Foundation 70 East Lake Street Suite 1015 Chicago, IL 60601-5907 Tel: (312)332-1350 Fax: (312)332-4757 Email: info@girf.org Internet: http://www.girf.org
Pull-Thru Network 2312 Savoy Street Hoover, AL 35226 USA Tel: (205)978-2930 Email: PTNmail@charter.net Internet: http://www.PullthruNetwork.org
MUMS National Parent-to-Parent Network 150 Custer Court Green Bay, WI 54301-1243 USA Tel: (920)336-5333 Fax: (920)339-0995 Tel: (877)336-5333 Email: mums@netnet.net Internet: http://www.netnet.net/mums/
Erythema Nodosum Yahoo Support Group Internet: http://health.groups.yahoo.com/group/erythema_nodosum_Group/
Genetic and Rare Diseases (GARD) Information Center PO Box 8126 Gaithersburg, MD 20898-8126 Tel: (301)251-4925 Fax: (301)251-4911 Tel: (888)205-2311 TDD: (888)205-3223 Email: ordr@od.nih.gov Internet: http://rarediseases.info.nih.gov/Default.aspx
Madisons Foundation PO Box 241956 Los Angeles, CA 90024 Tel: (310)264-0826 Fax: (310)264-4766 Email: getinfo@madisonsfoundation.org Internet: http://www.madisonsfoundation.org
Autoimmune Information Network, Inc PO Box 4121 Brick, NJ 08723 Tel: (732)664-9259 Email: autoimmunehelp@aol.com Internet: http://www.aininc.org
European Society for Immunodeficiencies (ESID) c/o Dr. Bodo Grimbacher (ESID Board Member) Division of Rheumatology and Clinical Immunology Department of Medicine, University Hospital Freiburg Hugstetter Strasse 55 Freiburg, D-79106 Germany Tel: +31 73-6992965 Fax: +31 73-6992948 Email: info@esid.org Internet: http://www.esid.org
AutoImmunity Community Tel: (919) 552-9057 Email: bandrews@autoimmunitycommunity.org Internet: http://autoimmunitycommunity.org
CORE 3 St. Andrews Place London, NW1 4LB UK Tel: 020 7486 0341 Fax: 020 7224 2012 Email: info@corecharity.org.uk Internet: http://www.corecharity.org.uk
For a Complete ReportThis is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians. It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder. For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 4/23/2008 Copyright 1986, 1988, 1990, 1991, 1993, 1994, 1995, 1996, 1997, 1998, 1999, 2000, 2001, 2002, 2003, 2008 National Organization for Rare Disorders, Inc.
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