National Organization for Rare Disorders, Inc.Tourette SyndromeImportant It is possible that the main title of the report Tourette Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Synonyms- Chronic Multiple Tics
- Gilles de la Tourette's syndrome
- Habit Spasms
- Maladie de Tics
- Tics
- Tourette's disorder
- TS
- Gilles de la Tourette's disease
- Chronic Motor Tic
- Paulitis
- GTS
Disorder SubdivisionsGeneral DiscussionTourette Syndrome is a hereditary neurological movement disorder that is characterized by repetitive motor and vocal tics. Symptoms may include involuntary movements of the extremities, shoulders, and face accompanied by uncontrollable sounds and, in some cases, inappropriate words. Tourette Syndrome is neither a progressive nor degenerative disorder; rather, symptoms tend to be variable and follow a chronic waxing and waning course throughout an otherwise normal life span. The specific symptoms associated with Tourette Syndrome often vary greatly from case to case. The exact cause of Tourette Syndrome is unknown. ResourcesTourette Syndrome Association, Inc. 42-40 Bell Boulevard Suite 205 Bayside, NY 11361-2820 Tel: (718)224-2999 Fax: (718)279-9596 Tel: (888)486-8738 Email: ts@tsa-usa.org Internet: http://www.tsa-usa.org
WE MOVE (Worldwide Education and Awareness for Movement Disorders) 204 West 84th Street New York, NY 10024 USA Tel: (212)875-8312 Fax: (212)875-8389 Email: wemove@wemove.org Internet: http://www.wemove.org
National Institute of Neurological Disorders and Stroke (NINDS) P.O. Box 5801 Bethesda, MD 20824 Tel: (301)496-5751 Fax: (301)402-2186 Tel: (800)352-9424 TDD: (301)468-5981 Email: me20t@nih.gov Internet: http://www.ninds.nih.gov/
Tourette Syndrome Foundation of Canada 5945 Airport Rd - Suite #195 Mississauga, Ontario Ontario, L4V 1R9 Canada Tel: 905673-2255 Fax: 905673-2638 Tel: (800) 361-3120 Email: tsfc@tourette.ca Internet: http://www.tourette.ca
MUMS National Parent-to-Parent Network 150 Custer Court Green Bay, WI 54301-1243 USA Tel: (920)336-5333 Fax: (920)339-0995 Tel: (877)336-5333 Email: mums@netnet.net Internet: http://www.netnet.net/mums/
Sjældne Diagnoser / Rare Disorders Denmark Frederiksholms Kanal 2, 3rd Floor Copenhagen K, 1220 Denmark Tel: 45 33 14 00 10 Fax: 45 33 14 55 09 Email: mail@sjaeldnediagnoser Internet: http://www.raredisorders.dk
New Horizons Un-Limited, Inc. 811 East Wisconsin Ave Suite 937 Milwaukee, WI 53202 USA Tel: (414)299-0124 Fax: (414)347-1977 Email: horizons@new-horizons.org Internet: http://www.new-horizons.org
Genetic and Rare Diseases (GARD) Information Center PO Box 8126 Gaithersburg, MD 20898-8126 Tel: (301)251-4925 Fax: (301)251-4911 Tel: (888)205-2311 TDD: (888)205-3223 Email: ordr@od.nih.gov Internet: http://rarediseases.info.nih.gov/Default.aspx
Madisons Foundation PO Box 241956 Los Angeles, CA 90024 Tel: (310)264-0826 Fax: (310)264-4766 Email: getinfo@madisonsfoundation.org Internet: http://www.madisonsfoundation.org
Child Neurology Foundation 2000 West 98th Street Bloomington, MN 55431 USA Tel: (952)641-6100 Fax: (952)881-6276 Tel: (800)263-5430 Email: jstone@childneurologyfoundation.org Internet: http://www.childneurologyfoundation.org
For a Complete ReportThis is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians. It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder. For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 10/12/2007 Copyright 1984, 1985, 1986, 1987, 1988, 1989, 1990, 1992, 1994, 1996, 1997, 1998, 1999, 2000, 2002, 2005, 2007 National Organization for Rare Disorders, Inc.
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